MSP calls for more financial support for muscular dystrophy care

27 October 2009

Marlyn Glen is supporting moves to shift the provision of essential care advice for those with muscular dystrophy from "hard-working campaigning charities to the more financially-secure National Health Service."

Ms. Glen said that the Muscular Dystrophy Campaign had informed her that there are around 400 adults and children in the NHS Tayside area living with muscular dystrophy or a related neuromuscular condition.

At present, there are 2 part- time muscular dystrophy Care Advisor posts who are funded through the Muscular Dystrophy Campaign, serving the whole of Scotland.

One advisor, based in Edinburgh, also supports clinics for adults and children in Dundee, Fife, Aberdeen and Inverness.

Ms. Glen is writing to Health Secretary Nicola Sturgeon calling for "swift approval" for a grant application for full-time posts for Care Advisors within the NHS.

Ms. Glen said,

" Key workers such as Care Advisors play an indispensable role in the multidisciplinary teams who co-ordinate services and support, particularly in the transitional period from childhood to adulthood.

"Hard-working campaigning charities such as the Muscular Dystrophy Campaign are right to say that the funding of Care Advisors should be transferred to the relatively more secure realm of the NHS to emphasise the need for more specialist care for this debilitating disease."

 

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